Welcome!
In a former life, I taught and researched philosophy at university. I was working on many things, among which the philosophy of illness, disability, and medicine. I was in the early stages of writing a book, which I’d tentatively titled Epistemology of the Clinic . In September 2022, a covid infection disabled me. I acquired many new illnesses under the umbrella term of “long Covid”, by far the most disabling of which is myalgic encephalomyelitis (ME, also sometimes ME/CFS). I have a severe form of ME: I was almost completely bedbound until April 2023, when a reinfection or a bad reaction to a medication left me entirely bedbound: my feet have not touched the floor at all since. I am very sick, and forced to spend the vast majority of my days lying in complete silence and darkness, and to endure quite a horrific level of suffering. The rest of the time, I can use my phone a bit, and sometimes have very short (but precious) conversations with my best friend and carer Camilla. I have bee...